National Eating Disorders Association

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Mom1970
No insurance,no hope

Hi,
I am new to this website and forum,But not new to this disease.I have a 17 year old who is going downhill fast.Last year, she had her appendix and gall bladder removed and decided to go on the internet and search up the complications and recovery side effects.She was mortified because a few of the older women gained weight.While in the hospital, she was told by a doctor( a gastrointestinal one) that she could take a medication once a day to help keep her regular. That was a year ago.She now takes it more than that.She is having complications and has no energy to do anything.She limits her meals and calories and even though she has junk foods quite a bit still hasn't gotten anywhere.We do not have any insurance and I am concerned that this disease will kill her.What does one do when you have no insurance and no money? I was reading about the medication and from what I gather,her body will not be able to digest food without it,Because she has made her body dependant on it.What do I do.I am not a very educated person and I feel like she has manipulated me to the point where she has the control and ,I feel helpless. What does one do with this.I love my child and do not want to lose her to this dreadful disease. Has anyone ever had this kind of thing happen.I feel the doctor has caused this by giving her the OK to take the medication. I feel I have done this because I am my sister and mom are big women,I feel like a failure as a mom for letting it go on.Thanks for reading

Mady1012
Hi Mom1970

Welcome to the forums! I am sorry to hear about your daughter. This must be a difficult time for you. Have you talked to your daughter about your concerns and feelings of her current actions and state? As far as not having insurance, yes this can make things more difficult, but there are still ways to obtain help. I would recommend going to https://www.nationaleatingdisorders.org/insurance-resources there may be useful information for you on there. You can also contact the NEDA Helpline at 1-800-931-2237 M-TH 9AM-9PM F 9AM-5PM and they can guide you to resources in your area as well as answers questions you may have. I hope these suggestions help, and please continue posting to let us know how you and your daughter are doing.

Mady

_admin_moderator
Mom1970

Hi Mom1970,

We had to slightly edit your post due to some material violating the community guidelines. If you have any questions about the community guidelines you can find them at https://www.nationaleatingdisorders.org/community-guidelines. We hope to see you continue posting. Thank you for understanding and have a wonderful day!

NEDA Forum Moderators

kelsey207
Hi Mom1970,

Welcome to the NEDA Forums, and thank you for reaching out. I'm sorry to hear about your daughter's health, and I'm sorry for the stress the ED is putting you through, too. I think Mady1012's suggestions are excellent: NEDA has great resources for helping people with insurance issues, and the Helpline is a great way to find out more about what options are out there. Another great resource is the NEDA Parent Toolkit, which has lots of useful information about EDs in general, but also has extra information about insurance issues starting on page 43: https://www.nationaleatingdisorders.org/sites/default/files/Toolkits/Par...

You might also get in touch with the hospital or doctor who managed your daughter's appendix and gall bladder surgery. Perhaps they have seen this kind of "side effect" (so to speak) of the surgery before with other patients who have started abusing the medications and they might have suggestions for how to proceed. I'm not an expert by any means, but perhaps since your daughter is continuing to have after-effects from that surgery, perhaps she's entitled to some maintenance of care from those physicians or from the hospital. It's worth looking into! You might also be able to get a professional opinion about whether or not your daughter now has a dependence on the medication to digest food. Talking with a doctor who knows about the medications and about the specific details of your daughter's case would be really helpful.

Please know that you aren't alone in this. Insurance issues are a huge hurdle with ED treatment (and with mental health treatment in general). And, I know that many people on these forums can relate to the feeling of being helpless when faced with EDs. This is not your fault or your daughter's fault. As you said, these are dreadful diseases. You are not a failure by any means. In fact, I would say you are doing a great job as a mother by recognizing your daughter's health problems and by doing research to figure out what is best for her. This is a complicated situation. But you don't have to go at it alone! NEDA has many great resources, and all of us here on the forums are here for you. We want you and your daughter to be happy and healthy.

I hope this is helpful. Please don't hesitate to post here if you have more questions or need more support. We're here for you! Please keep us updated on how you and your family are doing!