Research Study Listings

NEDA is committed to supporting research by connecting participants with research studies. The following research opportunities were submitted to NEDA with IRB approval.

Disclaimer: Please note that NEDA shares these studies as an information resource only. This listing does not imply endorsement or recommendation of the studies, the researchers, or the institutions listed. Please direct any questions about the studies to the researchers.

By Diagnosis

Anorexia Nervosa


Research Study: BrainEx Study

Contact Information
Contact Name: Kianna Zucker
Email:
Study Location: 675 18th Street, San Francisco, CA 94107
Website: https://gorrelllab.ucsf.edu/

Research Setting
Hospital with Separate Setting

Study Period
Start Date: 1/21/2021
End Date: 3/31/2026
IRB Approved

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: All genders
Age: 14-18 years old
Travel: In person visits are located at: 675 18th Street, San Francisco, CA 94107

Compensation
$150 Amazon gift card

Study Information
Study Involves: Participants are randomly assigned to complete either 1 or 2 in-person study visits

In the 1st study visit, all participants complete:
– A short interview with our team
– Computer tasks
-Online surveys

In the 2nd study visit, ~40% of participants:
– Receive an fMRI scan (painless brain scan)

Description of Services: We are recruiting teens (ages 14-18) with anorexia nervosa OR with no history of an eating disorder or a current psychiatric disorder to participate in a neuroimaging study that is exploring how anorexia might be linked to changes in the brain that impact decision-making.

Participants will be randomly selected to attend either one or two in-person study visits. In the first study visit, all participants will complete a short interview, computer tasks, and surveys. Participants who are randomized to a second study visit will undergo a safe, noninvasive fMRI scan.

Participants receive a $150 Amazon gift card for participating. If you or someone else you know might be eligible, or if you have any questions, contact !

Research Study: CHARM Study: Characterizing homeostatic and neuro-computational reward mechanisms in anorexia nervosa

Contact Information
Contact Name: Margaret Westwater
Email:
Study Location: Yale University Magnetic Resonance Research Center (New Haven, CT)
Website: https://medicine.yale.edu/ycci/trial/gut-brain-signaling-in-anorexia-nervosa/?tab=volunteer

Research Setting
Hospital with Separate Setting

Study Period
Start Date: 11/13/2023
End Date: 6/10/2026
IRB Expiration Date: 6/10/2026

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: Women
Age: 18-45 years old
Travel: Yes. This study involves two in-person visits to the Magnetic Resonance Research Center at Yale University in New Haven, CT. Travel expenses may be reimbursed.
Additional Information: To be eligible, you should meet the criteria below:
– Female
– 18-45 years old
– Have current symptoms or a diagnosis of anorexia nervosa
– No history of brain injury or neurological conditions

Compensation
You will be compensated up to $240 for your time. Travel expenses may be reimbursed.

Study Information
Study Involves: We are inviting women who are currently suffering with anorexia nervosa symptoms to participate in a brain imaging study on decision-making. You will complete two visits to the Yale University Magnetic Resonance Research Center (New Haven, CT).

At the screening visit, we will collect a blood sample and ask you some questions about your health history. The study visit will involve questionnaires, computer tasks, an MRI scan, and additional blood sampling. Then, we will ask you to complete follow-up surveys at home.

Description of Services: The study procedures are summarized above. Please email for additional details.

Research Study: Confirming the Effectiveness of Online Guided Self-Help Family-Based Treatment for Adolescent Anorexia Nervosa

Contact Information
Contact Name: Hazal Gurcan
Email:
Website: https://med.stanford.edu/edresearch/studies.html

Research Setting
Online Survey, Hospital with Separate Setting

Study Period
Start Date: 3/1/2023
End Date: 3/1/2028
IRB Expiration Date: 9/26/2024

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: All genders
Age: 12-18 years old
Travel: None
Additional Information: Adolescent participant is between the ages of 12 and 18 years of age with DSM-5 AN; Adolescent participant lives with at least one family member; Parents of the adolescent participant are able to read and speak fluent English; Family has access to a computer with a reliable internet connection; Adolescent participant is medically stable for remote, outpatient treatment.

Compensation
None

Study Information
Study Involves: Stanford University is conducting a study on virtual treatments for anorexia nervosa in adolescents. The study will consist of: Randomization to either: Virtual family-based treatment (FBT-V), or Online guided self-help family-based treatment (GSH-FBT). In addition to treatment, participants will complete assessments and questionnaires throughout the course of the study.

Description of Services: With an incidence rate of about 1%, Anorexia Nervosa (AN) is a serious mental disorder associated with high mortality, morbidity, and cost. AN in youth is more responsive to early treatment but becomes highly resistant once it has taken an enduring course. The first-line treatment for adolescents with AN is Family Based Treatment (FBT). While FBT can be delivered using videoconferencing (FBT-V), therapists’ limited availability hampers scalability. Guided self- help (GSH) versions of efficacious treatments have been used to scale and increase access to care. The main aim of this proposed comparative effectiveness study is to confirm that clinical improvements in GSH-FBT are achieved with greater efficiency than FBT-V in generalizable clinical settings.

Research Study: Efficacy and Safety of COMP360 Psilocybin Therapy in Anorexia Nervosa: a Proof-of-concept Study

Contact Information
Contact Name: Greg Fonzo
Email:
Study Location: Texas
Website: https://www.clinicaltrials.gov/study/NCT05481736?term=Efficacy%20and%20Safety%20of%20COMP360%20Psilocybin%20Therapy%20in%20Anorexia%20Nervosa:%20a%20Proof-of-concept%20Study&rank=1

Study Period
Start Date: 10/12/2022
End Date: 6/1/2024
IRB Expiration Date: 11/20/2024

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: All genders
Age: 18+
Travel: Yes. Out-of-state travel expenses will be covered by study sponsor. More details to follow.

Compensation
None.

Study Information
Study Involves: Study participants receive investigational psilocybin treatment and follow-up care at no-cost.

Description of Services: The purpose of this study is to investigate if COMP360 psilocybin therapy might help lessen the symptoms of AN. COMP360 is a synthetic form of psilocybin, a chemical compound found in some species of mushrooms. Research suggests that psilocybin may help in treating AN. COMP360 works on the serotonin system in the brain which is linked to the regulation of mood. Total participation in this study will be a minimum of 15 weeks and up to approximately 18 weeks. This includes the following:

A screening period (to confirm suitability for the study, meet with a trained therapist, and prepare for receiving the study drug) of a minimum of 3 weeks and up to 6 weeks.
A baseline visit (where subject will have a final preparation session with the therapist and to confirm that subject is still suitable for the study drug) the day prior COMP360 administration.
Dosing day (where subject will receive the study drug, COMP360) following completion of the screening period and baseline visit.
A safety follow-up period (to check overall health) during which time subject will attend the study clinic for regular visits over approximately 12 weeks.

The study is looking for individuals:

18 years of age or older
Meet criteria for Anorexia Nervosa: Restrictive or Binge-Purging type
Have at least one documented prior attempt at treatment in the past 3 years
Study participants receive investigational treatment (psilocybin-assisted psychotherapy) and follow-up care at no-cost. Travel and study related costs may be reimbursed.

Interested individuals can email , fill out a screening

Survey at this link: tiny.cc/UT2020 using referral code: COMP401, or call 512-495-5566 for more information and to begin the eligibility assessment process.

If you would like to reach the Center for Psychedelic Research and Therapy, we can be reached at , or you may contact Dr. Fonzo, Center Co-Director, at .

Research Study: Helping HAND

Contact Information
Contact Name: Carli Howe
Email:

Research Setting
Online Survey

Study Period
Start Date: 12/1/2022
End Date: 4/1/2024
IRB Expiration Date: 6/1/2024

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: Women
Age: 18 years and older
Travel: None
Additional Information: Participants must:
– Have been discharged from intensive eating disorder treatment (inpatient, residential, PHP, or IOP) for anorexia nervosa in the past 2 months
– Be a woman 18 years of age and older
– Be an English-speaking U.S. resident
– Endorse having a physician who is monitoring their health
– Be at a BMI greater than or equal to 17.0
– Endorse not using a feeding tube for any reason.

Compensation
Participants will be compensated up to $130 over the course of the study.

Study Information
Study Involves: Participants may be assigned to three different conditions: treatment as usual condition, app condition, and app + social networking condition. Participants in the treatment as usual condition will continue to seek out any other care they may have access to and will be asked to fill out a survey and have a brief virtual assessment visit with study coordinators at a baseline visit, 6-week visit, 6-month visit, and 9-month visit to monitor progress and eating disorder symptomatology. Participants assigned to the app condition will be given 6 months access to a coached, CBT-based mobile app designed to serve as a self-help tool to aid in recovery. These participants will also be required to engage in the surveys and virtual assessments with the study coordinators. Participants assigned to the app + social networking condition will also have access to the app for 6 months, as well as be given access to a private Facebook page with others in the study that is focused on eating disorder recovery content. This group must also engage in the surveys and virtual assessments with the study coordinators.

Interested participants who would like to participate or learn more about the study can take a short 10-minute survey linked here: https://redcap.wustl.edu/redcap/surveys/?s=MYLCKP3PPWMENJRM.

Description of Services: We received funding from the National Institute of Mental Health (NIMH) to pilot a coached, CBT-based mobile app for women with anorexia nervosa (AN) to use in the post-acute treatment period that could be used in addition to any other services individuals have access to. This app has been developed based on the team’s existing work on a coached, CBT-based mobile app for college women with binge-type eating disorders, with our content adapted to be more relevant for this population (i.e., women with AN being discharged from acute treatment), to focus on highly salient issues like motivation for treatment and recovery. Participants will be randomly assigned to one of three conditions: treatment as usual, treatment as usual plus our mobile intervention, or treatment as usual plus our mobile intervention with a social networking component. The sample for this aspect of the project will consist of 90 participants.

Research Study: UCSF FBT Study

Contact Information
Contact Name: Kianna Zucker
Email:
Study Location: 675 18th Street, San Francisco, CA 94107
Website: https://reillylab.ucsf.edu/

Research Setting
Hospital with Separate Setting

Study Period
Start Date: 8/21/2023
End Date: 8/31/2027
IRB Approved

Diagnosis Researched
Anorexia Nervosa

Participant Requirements
Gender: Women
Age: 14-17 years old
Travel: In person visits are located at: 675 18th Street, San Francisco, CA 94107

Compensation
Up to $235 in Amazon gift cards

Study Information
Study Involves: Participants with anorexia nervosa will receive 6 months of family-based treatment at no cost through our clinic at UCSF.

The research component of our study includes:
– A screening call
– A Zoom appointment
– 1-3 meetings in person. Participants with anorexia nervosa will attend an in-person appointment in the first week of treatment, 1 month later, and after 6 months of treatment. During each meeting, teens will be asked to complete self-report questionnaires and some brief computer tasks.

Description of Services: We are recruiting adolescent females aged 14-17 who either struggle with anorexia nervosa and are already receiving care through the UCSF Eating Disorders program, or adolescent females aged 14-17 who have never struggled with an eating disorder or a psychiatric disorder.

Participation in the study will involve completing a brief screening process, attending a Zoom appointment, and 1-3 meetings in person. During each meeting, teens will be asked to complete self-report questionnaires and some brief tasks.

Participants can earn between $95 – $235 for participation in the study.

Participants struggling with anorexia nervosa will receive up to 6 months of psychotherapy at no cost with members of our team.

For more information, contact !

ARFID (Avoidant Restrictive Intake Disorder)


Research Study: ARFID- Genes and Environment (ARFID-GEN)

Contact Information
Contact Name: Jennifer White
Email:
Website: http://arfidgen.org

Research Setting
Online Survey, College/University

Study Period
Start Date: 1/5/2023
End Date: 8/31/2024
IRB Expiration Date: 8/8/2024

Diagnosis Researched
ARFID

Participant Requirements
Gender: All genders
Travel: None
Additional Information: All participants must have a mailing address in the United States. For participants under 18, parent/guardian consent is required.

Compensation
For those who complete the required questionnaires and submit a saliva sample, a $25 amazon gift card is provided.

Study Information
Study Involves: The study involves taking an online eligibility survey to see if you are a good fit for the study. If so, you will be asked to answer additional online questionnaires and provide a saliva sample using an at-home test we mail to you.

Description of Services: The ARFID- Genes and Environment (ARFID-GEN) research study is looking at environmental and genetic factors associated with avoidant/restrictive food intake disorder. Anyone with ARFID, picky eating, food aversion, disinterest in food, or has a fear of choking/vomiting is invited to participate. A medical diagnosis is not required.

Binge Eating Disorder


Bulimia Nervosa


OSFED (Otherwise Specified Feeding or Eating Disorder)


Multiple Diagnoses


Research Study: Assessing the Influence of Caregiver Factors on Family-Based Treatment (FBT) for Child and Adolescent Eating Disorders

Contact Information
Contact Name: Sara A McCord
Email:
Website: https://unesurveys.au1.qualtrics.com/jfe/form/SV_bOr9S3xyO6ydvP8

Research Setting
Online Survey

Study Period
Start Date: 12/19/2023
End Date: 12/19/2024
This study has received approval from the HREC (Human Research Ethics Committee). Expiration Date: 12/19/2024

Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Caregivers of children or adolescents aged 6-18 receiving eating disorder treatment

Participant Requirements
Gender: All genders
Age: 18+
Travel: None
Additional Information: Must be an adult caregiver participating either currently or recently in a young person’s eating disorder treatment.

Compensation
None.

Study Information
Study Involves: Participants will complete an online survey once, which will take 10-20 minutes.

Description of Services: This study tests a new assessment measure to identify caregiver strengths and challenges, so that appropriate support may be offered to assist parents and care givers participating in eating disorder treatment for a child or adolescent.

Research Study: Barriers and Facilitators to Psychiatrist Adherence to Clinical Practice Guidelines for Eating Disorder Treatment

Contact Information
Contact Name: Pamela Dow
Email:

Research Setting
Community Mental Health, University/College Counseling Program, Private Practice, Residential Setting, Hospital with Separate Setting, Hospital without Separate Setting, Online Survey

Study Period
Start Date: 5/8/2023
End Date: 8/3/2024
IRB Expiration Date: 8/3/2024

Diagnosis Researched
Anorexia Nervosa, Binge Eating Disorder, Bulimia Nervosa

Participant Requirements
Gender: All genders
Age: 18+
Travel: None
Additional Information: Must be located in the U.S.; Must have been treated by a psychiatrist (MD/DO) in the past 12 months.

Compensation
$5

Study Information
Study Involves: Participating in an online survey of approximately 16 multiple-choice and Likert questions, followed by demographic questions. Participation will last approximately 10 minutes.

Description of Services: The purpose of this research is to explore the extent of psychiatrist adherence to the American Psychiatric Association’s (APA) clinical practice guideline for eating disorder treatment. This study aims to explore patient experiences during eating disorder treatment and overall satisfaction with their psychiatric treatment, describing patient perspectives about variations in psychiatrists’ adherence to clinical practice guideline recommendations by guideline component and practice characteristics.

Research Study: Cognitive Behavioral Therapy (with Self-Compassion) versus Mindfulness for Adolescents with Bulimia Nervosa and Higher Weight

Contact Information
Contact Name: Janet Lydecker
Email:
Website: https://linktr.ee/yaleteenpower

Research Setting
Hospital with Separate Setting

Study Period
Start Date: 1/1/2023
End Date: 12/31/2025
IRB Expiration Date: 12/31/2025

Diagnosis Researched
Binge Eating Disorder, Bulimia Nervosa, OSFED
Additional Notes: Teens with higher weight and binge eating and extreme weight control behaviors (purging) – can be subthreshold BN

Participant Requirements
Gender: All genders
Age: 13-19 years old
Travel: None
Additional Information: Parent of child <18 must provide consent and participate in monthly family sessions.

Compensation
$225

Study Information
Study Involves: Interview at beginning and end; monthly surveys; weekly online (zoom) telehealth 1-hour therapy sessions with clinician.

Description of Services: We are recruiting adolescents who binge and purge (or go to extremes to lose weight) and have a higher weight.

About the treatment:
The study treats bulimia nervosa using cognitive behavioral therapy or mindfulness
The treatment is delivered by telehealth (zoom)
There is no cost to the patient, and no cost to their insurance
Treatment lasts 4 months

Who to refer:
Adolescents (all genders) between 12-19 years old
For this study, binge eating is feeling out of control while eating; purging can be many different behaviors including self-induced vomiting, overexercise, fasting, misusing laxatives/diuretics, etc.

To see if eligible:
The teen or parent can call: (203) 785-7210 or email:
The teen or parent can review general information: http://m.yale.edu/teenpower
Direct-to-provider: email Dr Lydecker at

Research Study: Eating Behavior Treatment Study

Contact Information
Phone: (240) 281-1475
Study Location: 401 Quarry Rd Stanford, CA 94305
Website: http://eatingbehaviortreatment.com/

Research Setting
Community Mental Health, Hospital with Separate Setting,  Online Survey

Study Period
Start Date: 5/15/2023
End Date: 5/15/2024
IRB Expiration Date: 5/15/2024

Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder, Purging Disorder

Participant Requirements
Gender: Women
Age: 18-34 years old
Travel: Yes: Study participation is in-person on Stanford University campus.

Compensation
Up to $305

Study Information
Study Involves: 1. Initial interest/intake questionnaire
2. Pre-eligibility interview (follow-up on questionnaire)
3. Official eligibility interview (diagnostic interview)
4. Baseline in-person assessment (surveys, MatLab tasks, fMRI prep & scheduling)
5. Baseline fMRI scan
6. Randomization to one of two 8-week one-hour group treatments
7. Post-participation interview
8. Post-participation in-person assessment (surveys, MatLab tasks, fMRI scheduling)
9. Post-participation fMRI scan
10. 6-month follow-up assessment (interview & at-home surveys)

Description of Services: This is a randomized control trial comparing two eating disorder group treatments. Treatment is designed to improve functioning and reduce eating disorder symptoms. Participants complete interviews, in-person assessments, and fMRI scans in advance of eight weeks of 1-hr group treatment. Post-treatment, participants re-complete the interviews, assessments, and scans, and are then contacted a final time 6-mo later for an interview and at-home surveys.

Research Study: Exploring Occupational Identify in Young Adults with Eating Disorders: A Qualitative Approach

Contact Information
Contact Name: Chinemerem Ubbaonu
Email:

Study Period
Start Date: 1/1/2024
End Date: 3/1/2024
IRB Expiration Date: 11/20/2024

Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder

Participant Requirements
Gender: All genders
Age: 18-35 years old
Travel: None
Additional Information: Individuals self-identify as having an eating disorder and under current treatment plan and/ or individuals’ post-recovery, English-speaking, and between ages 18-35.

Compensation
There is no compensation for participating in this study apart from contributing to limited research in this area.

Study Information
Study Involves: This qualitative research project explores challenges in occupational identity for young adults with eating disorders and/or post-recovery. To address the research questions, this research will involve a qualitative design and analysis. An interview protocol will be developed to address the challenges with an occupational identity that young adults with and/or post-recovery from an eating disorder face daily. At the beginning of the interview protocol, participants will answer demographic questions including age, eating disorder sub-type, length of eating disorder and/or recovery length. Afterward, the interview protocol will involve questions regarding impaired routines, habits, and sense of identity. Additionally, challenges with occupations and ways a sense of identity has been impacted will be included.
There will be an audio-recorded interview through Ring Central for individuals recruited through the website/social media.

Description of Services: The purpose of this qualitative research type capstone project is to explore the changes in occupational identity of young adults with eating disorders or post recovery and the influence on interpersonal functioning and occupational performance. Participating in meaningful occupation helps individuals with eating disorders establish healthy meaning in life, which allows for reorganization of healthy occupational identity, which is provided through OT services (St-Pierre at al., 2023). Through implementation of this qualitative type project, the goal is to identify the occupational identity of young adults with eating disorders or post recovery to improve occupational therapy evaluation and intervention. With improved evaluation and intervention, Occupational therapists will be able to address young adults with eating disorders facing difficulty with developing healthy occupational identity in the future. The research design will be a basic qualitative methodology. Interview data will be collected and analyzed for common themes.

Research Study: Investigating the Role of Friendships in Eating Disorder Recovery

Contact Information
Contact Name: Marianne Rouleau-Tang
Email:

Research Setting
Community Mental Health, Online Survey

Study Period
Start Date: 2/20/2024
End Date: 7/31/2024
This study has received approval from the Research Ethics Board (REB) from the University of Toronto. Expiration Date: 2/5/2025

Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Any individual who has recovered from an Eating Disorder.

Participant Requirements
Gender: All genders
Age: 18+ (Adults)
Travel: None

Compensation
$5.5 CAD ($4.10 USD) for survey, $16.55 CAD ($12.3 USD) per hour for the interview.

Study Information
Study Involves: Completing a 15-minute virtual screening questionnaire (Includes the EDE-Q and other personal questions).

Eligible participants will be asked to complete a virtual interview, answering questions about their experiences with friendships during their eating disorder recovery.

Description of Services: Researchers at the University of Toronto are seeking participants for a study investigating the role of friendships in Eating Disorder Recovery. This study involves completing one questionnaire and a one-hour-long interview session. Your valuable insights can help us understand how friendships influence recovery outcomes.

Research Study: Single-Session Online Body Image and Mood Program for LGBTQ+ Youth

Contact Information
Contact Name: Arielle Smith
Email:
Website: https://northwestern.az1.qualtrics.com/jfe/form/SV_9KtAsaYRkdZaWcC?Source=NEDA

Research Setting
Online Survey

Study Period
Start Date: 12/7/2023
End Date: 5/1/2024
IRB Expiration Date: 10/26/2024

Diagnosis Researched
Anorexia Nervosa, ARFID, Binge Eating Disorder, Bulimia Nervosa, OSFED; Any elevated body image concerns (no diagnosis required), co-occurring mood concerns

Participant Requirements
Gender: All genders
Age: 13-17 years old.
Travel: None
Additional Information:
● Are 13-17 years old
● Are part of the LGBTQ+ community
● Report body image concerns
● Report a depressed mood

Compensation
$10 for the initial survey, $5 for the follow-up survey (via Amazon gift cards)

Study Information
Study Involves: If you agree to be in this research study, you will be asked to complete the following steps:
● Fill out an online survey that will ask you some questions about yourself. This survey will take about 15 minutes.
● After you finish the survey, you will try one of two 20-minute online programs. The group of study participants you will be assigned to will be chosen by chance, like flipping a coin. Neither you nor the study team will choose which study group you are assigned to. You will have an equal chance of being assigned to any given group. (You have the same chance of being placed in either group).
● After the program, you’ll take another online survey. It will ask what you think about the program, your body, and your mood. This online survey will take 10 minutes.
● In 3 months, we will contact you again to answer more questions about how you’ve been doing. This online survey will take 15 minutes.
All of these steps will happen completely online, on your own device.

Description of Services: We want to find out if doing an online program can help teens feel better about their bodies and mood. Participants will be asked to answer some questions about their life and how they feel about their body and mood. Then, they will be randomly assigned to one of two online activities. They will get access to both activities for free once they complete the study.

Research Study: Sleep & Eating Study

Contact Information
Contact Name: Nicole Johnson
Email:
Website: https://eatingbehaviorslab.wixsite.com/eatingbehaviorslab/about-4

Research Setting
Online Survey

Study Period
Start Date: 7/25/2023
End Date: 8/16/2024
IRB Expiration Date: 8/16/2024

Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder, Adults with current binge eating

Participant Requirements
Gender: Women
Age: 18 years and older
Travel: None
Additional Information: 1. At least 18 years old
2. Assigned female at birth (including gender-diverse adults)
3. Must have access to a smartphone or mobile device
4. Must have current binge eating, which is determined when potential participants complete the eligibility screening.

Compensation
If participants complete the entire study, they will be compensated with up to $25 in the form of an Amazon gift card. In addition, if they complete at least 85% of the daily recordings over the 14 days, they will be entered into a raffle for the chance to win one of ten $25 gift cards (in addition to the base compensation). If they are a student at the Illinois Institute of Technology, they can also be compensated with 3.5 Sona course credits.

Study Information
Study Involves: Researchers in the Department of Psychology at the Illinois Institute of Technology are seeking participants for a research study examining sleep and other psychological factors that may contribute to eating disorder symptoms, such as binge eating.

We are recruiting individuals who are at least 18 years old, who were assigned female at birth (including gender-diverse adults), and who are currently experiencing binge eating to participate in this study. If interested, participants must complete an online questionnaire to determine their eligibility to participate in this study.

If eligible, participants will first complete an online questionnaire to gather baseline information. Over the next 14 days, they will use their mobile device to complete daily recordings of their sleep, emotions, stressful events, eating disorder behaviors, and perfectionism thoughts. Participation in this study should take a total of approximately 3.5 hours over a span of 15 days.

Special Topics

Co-Occurring Conditions


Research Study: Latin American Trans-ancestry Initiative for OCD genomics (LATINO)

Contact Information
Contact Name: Eric Storch
Email:
Website: http://www.latinostudy.org/

Research Setting
Online Survey, College/University

Study Period
Start Date: 1/1/2022
End Date: 12/31/2026
IRB Expiration Date: 4/26/2026

Diagnosis Researched
Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder, With co-occurring Obsessive-Compulsive Symptoms (current or in the past).

Participant Requirements
Gender: All genders
Age: 7-89 years old
Travel: None. Interviews are done via Zoom.
Additional Information: To participate in LATINO you must:

Have experienced symptoms of OCD now or in the past (even if you did not seek treatment)

Have at least one grandparent who was born in Mexico, Central America, South America, or the Caribbean.

Be between the ages of 7 and 89 years.

Given the high co-occurrence between symptoms of eating disorders and OCD, we are hoping to recruit individuals who experience both eating disorders and OCD symptoms (either current and/or past) in order to improve the representativeness of our sample, and to understand how certain clinical factors may relate to genetic make-up.

Interested individuals can complete the following link and then will be contacted:

https://redcap.research.bcm.edu/redcap/surveys/?s=4EFT77APTME3MLRA

Compensation
$25 for the one-time assessment

Study Information
Study Involves: The Latin American Trans-ancestry INitiative for OCD genomics (LATINO) is an NIH-funded research study with the goal of identifying factors contributing to the development of OCD in individuals who identify as Latino/Hispanic. It is being conducted by a group of researchers throughout the United States and Latin American countries. The lead sites are at Baylor College of Medicine and the University of North Carolina.

We are recruiting individuals who have had, or think they might have, OCD and are of Latin American/Hispanic ancestry defined as having at least one grandparent who was born in Mexico, Central America, South America, or the Caribbean.

Interested participants will answer questions about their experience with OCD and other problems over a 2 hour ZOOM meeting, and provide a spit sample for DNA (this will be mailed to you).

There are 4 simple steps to sign up for LATINO:

Provide consent for yourself or your minor child
Complete the ~5 minute eligibility survey.
https://redcap.research.bcm.edu/redcap/surveys/?s=4EFT77APTME3MLRA

Someone will reach out to schedule you for an interview (by Zoom, phone or in person)
Send a DNA sample through the mail using our spit kit

We would like to emphasize that you can stop taking part in LATINO at any time.

Description of Services: Obsessive-compulsive disorder (OCD) is a psychological condition impacting approximately 1-2% of the world population. Characterized by distressing intrusive thoughts and unwanted repetitive behaviors, OCD can have wide-reaching implications for both individuals with OCD and their families. While the impacts of this condition are well studied, what causes OCD remains less clear. Current evidence suggests that genetics play a role in the development and maintenance of OCD, however the exact genes and biological mechanisms contributing remain elusive. A better understanding of the role of genetics in this condition would greatly improve the ability to detect and diagnose the disorder while allowing treatments to be tailored to an individual’s unique genetic code. Termed precision medicine, this tailored approach has been explored for various psychological disorders, but genetic research on OCD has lagged behind until recently. Now, there is a worldwide study of OCD genetics with more than 46,000 people with OCD participating. However, this remarkable initiative is limited by almost exclusively representing those of European ancestry (>95% of current participants). This Eurocentric bias in would likely result in OCD genetic findings being more accurate for individuals of European ancestry than other ancestries, thereby contributing to health disparities in potential future applications of genomics in precision medicine.

Recently, an interdisciplinary team led by Drs. James Crowley (University of North Carolina at Chapel Hill) and Eric Storch (Baylor College of Medicine) was funded by the National Institute of Mental Health to carry out an ambitious project to address this lack of diversity. We aim to achieve this by recruiting and obtaining saliva samples for DNA from 5,000 Latino/Hispanic/Brazilian individuals (defined as having at least one Latino/Hispanic/Brazilian grandparent). Including a more diverse sample will further advance our ability to detect, diagnose, and treat individuals of Latino ancestry. Furthermore, mapping the OCD-specific genes for Latinos and comparing the results to those of European ancestry contributes to a more comprehensive and generalizable understanding of the common human genetic code, which will help us understand and treat those of any ancestry.

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If you are conducting research and are interested in recruiting participants in the eating disorder community, submit your study to be included in our listing.

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