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NEDA TOOLKIT for Parents Table of Contents I. The Toolkit Story………………………………………………………………….………………………………...3 II. Basic Information for Parents……………………………………………………………………………..5 Common myths about eating disorders………………………………………………………………………….6 Eating disorder signs, symptoms and behaviors…………………………………………………………..9 How to be supportive………………………………………………………………………………………………………..12 Ways to start a discussion with a loved one…………………….………………….………………………13 First steps to getting help…………………………………………………………………………………………………15 Advice from other parents: What to expect and how to respond………………………….17 Why parent-school communications may be difficult……………………………………………..20 Useful online resources for eating disorders……………………………………………………………...21 III. Treatment Information……………………………………………………………………………………….23 Treatments available for eating disorders…………………………………………………………………..24 The evidence on what treatment works………………………………………………………………………30 How to find a suitable treatment setting…………………………………………………………………….56 Treatment settings and levels of care…………………………………………………………………………..59 Questions to ask the care team at a facility………………………………………………………………..61 Questions to ask when interviewing a therapist………………………………………………………..62 Questions parents may want to ask treatment providers privately……………………..63 Online databases to find suitable treatment………………………………………………………………64 How to take care of yourself while caring for a loved one…………………………………….65 Confidentiality Issues………………………………………………………………………………………………………..66 IV. Insurance Issues…………………………………………………………………………………….………………67 Navigating and understanding insurance issues……………………………………………………….68 COBRA rights checklist……………………………………………………………………………………………………..74 Sample letters to use with insurance companies………………………………………………………75 How to manage an appeals process……………………………………………………………………………..83 V. Additional Resources……………………………………………………………………………………………85 Glossary…………………………………………………………………………………………………………………………………86 References……………………………………………………………………………………………………………………………95 Page | 2