National Eating Disorders Association

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Goldhawk
Re-myelination?

Hi all,

Here's a situation I can't seem to find much experience on-line about and so thought I'd reach out here. My previous post "Wife's Rocky Recovery" gives the background to this and I'm grateful to Michael 26 for his kind words in reply.

This post is about the methodology of one aspect of my Wife's recovery. Following an accident which damaged her teeth last year, it was suggested that she was low on Myelin. She has been following the advice, both general and in direct consultation, of a particular professional for some time and she is convinced that she needs to re-myelinate by following this professional's instructions related to eating and exercise.

The part which worries me is that there is no point at which this process can be seen to have finished. It is assumed that you 'just know' when it has and your body will react accordingly.

So my queries are thus:

Does anyone have any experience with re-myelinating?

and on a broader subject:

What are people's views on these methods?

My concern is that by consuming this amount beyond a point at which she has 'healed' and abstaining from exercise will affect her long-term health and happiness.

Any advice or comments are greatly received. Thanks in advance.

Goldhawk.

surikaye
Goldhawk

HI Goldhawk,

Thanks so much for your post... really sorry to hear about your wife's struggles and your subsequent struggles as her spouse, but congratulate you both on your work towards wellness!

Unfortunately, I do not know enough about your concerns to be able to offer any sort of helpful input, but I would encourage you to run your queries by a trained volunteer on the neda helpline- 1800-931-2237- as they may have a better idea about the issues raised.

Good luck and all the best!

afrost8173
Goldhawk,

Goldhawk,

My wife has been recovering with the same methodology and the process has been very difficult. Instead of a linear improvement it seems to be 2 step forward, 1 step back. 15 months in she is still exhausted and her blood work is out of range in a number of parameters, so I am very scared that she will just never get better.

It seems like it's been almost 2 years since you posted so I was wondering if your wife's efforts were successful. I need some hope that this truly is going to get better; right now I can't see the light at the end of the tunnel.

kelsey207
Hi afrost8173,

I'm not very familiar with these particular treatment methods, so I can't speak from experience. I will say that recovery can be a long process, and that recovery is different for every individual. What works for one person may not work for another. That being said, perhaps you and your wife could take some time to re-evaluate the treatment methods she's using. Is she working with a professional of some kind? Could she talk with this person about the progress she's made in recovery and see if she's heading in the right direction or if she might need to try something new? Perhaps she could see a doctor/GP of some kind to get her blood work looked at and see what a doctor thinks about the situation. Maybe she could even try a new treatment method and see if she likes it better. There are all kinds of different techniques and treatment settings. It can be tricky to find the right fit for each individual with an ED. If you want to find out about resources near you for you and for your wife, you can call or chat online with the NEDA Helpline: https://www.nationaleatingdisorders.org/information-referral-helpline .

Please keep us updated on how things are going! Stay strong. You're clearly a caring partner and it's great to see that you have your wife's best interests at heart and that you're involved in her recovery. Remember that recovery is possible! :)