National Eating Disorders Association

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I want help

I have a eating disorder similar to Prader Willi syndrome that makes it so I have to live in a group home that treats this sort of issue. I have been in and out of 2 other group homes beside this one partly due to the food not being locked up and other reasons. Like I said,
my doctor thinks I have an eating disorder similar to Prader Willi except that in the past when I stole food I only would steal one or two things. The real reason I am reaching out is because some of the staff at my group home keep checking the pantry which I know they are supposed to do but they only do it when I'm awake and in my room but when I am in the living room or another part of the house they don't check it. When they walk by my room to check it they always look at me like I stole something even when I didn't. One of the staff has also told the other staff to watch me when I go in the office because there is sometimes food in there also and when I walk by the fridge or freezer they always check it. It just makes me so mad and is the main reason why I used to steal food. I tried talking to people about it but it seems that no one understands or cares. I would appreciate it if someone could respond to this message. Thank you.


Dear CassaCD, welcome to the forums. We’re glad you’re here. We’re sorry to hear about what’s going on – if you need support or resources, we encourage you to reach out to our confidential NEDA Helpline at 800.931.2237 M-Th 11am-9pm ET and F 11am-5pm ET. You can chat with us online M-Th 9am-9pm ET and F 9am-5pm ET. Please don’t hesitate to get in touch - you matter, and you are not alone.

Sorry you're dealing with this

Hey CassaCD!! I’m sorry you’re dealing with this, and I’m sorry you’re feeling misunderstood. It totally makes sense that you’re feeling mad! I would definitely recommend calling the helpline number in the above comment so you can talk to someone about it. I’m sure that the people in your home care about you, but maybe their misunderstanding is getting in the way of them helping you.

Keep calm

It is very understandable that you are acting irrationally. It is highly recommended that you give the helpline number that was provided in the previous comment a call so that you can discuss it with another person. I have no doubt that the folks in your home care about you, but it's possible that their lack of understanding is preventing them from providing assistance to you.


Signs and symptoms of Prader-Willi syndrome can vary among individuals. Symptoms may slowly change over time from childhood to adulthood.


Individuals with Prader-Willi syndrome may exhibit different signs and symptoms. Symptoms from childhood to maturity may gradually alter over time.

Find an appropriate time to

Find an appropriate time to speak with a staff member or supervisor about how their actions make you feel. Explain that their behavior, particularly the constant checking, feels like suspicion and judgment. Be calm and respectful during the conversation to increase the chances of being heard.

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It's understandable that you're fuming at the moment. If you need to talk to someone about it, please dial the number provided in the previous comment. I have no doubt that your family and friends want to support you, but perhaps their lack of understanding is getting in the way.

You are living in a group

You are living in a group home due to an eating disorder similar to Prader Willi syndrome. Staff's constant suspicion and checks on food storage make you feel targeted and upset, leading to past food theft. Talking to them hasn't helped. It's essential to communicate openly about your feelings and experiences with the staff, involving your doctor or therapist if necessary. Herer's the reference

Good job

Remember, you deserve respect and understanding. Seek support from trusted individuals and practice self-care to manage your emotions better. Reach out to helplines in times of crisis. You are not alone in your journey, and many people care about your well-being. Keep seeking support until you find understanding. If you find emulator amazing you can always check this out


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Eating disorders are often associated with other psychological problems such as anxiety, depression, or low self-esteem. Seeking advice from a mental health professional with experience in eating disorders can help you understand and address the underlying cause.


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I'm really sorry

I'm really sorry to hear that you're going through this difficult situation. It's essential to communicate your feelings and concerns with the staff and perhaps even involve a therapist or counselor to help address these issues effectively. Your well-being is crucial, and it's important to find a supportive environment that understands your needs and helps you cope with your eating disorder. Don't hesitate to reach out to professionals who can provide the assistance you require. Wishing you the best on your journey to recovery.


It is comprehensible that you are currently furious. Please contact the number provided in the previous comment if you need to speak to someone about this. I have no doubt that your family and acquaintances want to support you, but perhaps their lack of understanding is a barrier.

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Eating “disorders” of people with Prader-Willi syndrome are frequently reported in the biomedical literature.


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