National Eating Disorders Association

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jhook73
ARFID

My 4 year daughter was recently diagnosed with having ARFID by both her pediatrician and a pediatric nutritionist. As a baby she never transitioned over to stage three foods with lumps and it's been downhill ever since. In the past two years we were appointed a feeding therapist twice a week for early intervention. Since then we have also seen different pediatricians, a gastro intestinal Doctor, another hospital affiliated feeding specialist, a psychologist, occupational therapists, feeding groups, pediatric nutritionists and I am certain there are two or three other professionals I have forgotten about in the haze of writing checks for inflated consultation fees (amounting to thousands of dollars). Throughout the past years we have gotten no where fast. My daughter will eat pizza (from a pizzeria only), goldfish, Ritz, ice cream and the occasional pancake but it's always a struggle. I have contacted Columbia University hospital, Penn State Children's hospital, Philadelphias children Hospital and last but certainly not least , Duke University's pediatric feeding program. Of course my insurance will not be accepted in any of these programs (as most are not) and they are ridiculously expensive (not that I'm putting a monetary value on my daughters health). I have read books, researched the internet until my eyes hurt and am perplexed as to what to do next. I am beside myself at the fact that all of the effort that I have put into getting her help for a problem that I am terrified that will manifest itself into something bigger and badder down the line, has amounted to nothing. I feel terribley alone because all I have heard is, "she'll outgrow it", "she'll eat when she's hungry", "don't let her leave the table until she's eaten what's on her plate" and many more. She has anxiety at parties when all the kids are eating and has literally started crying over it. She has seen me cry because of it too and tells me she's sorry she made me sad. I have hit a dead end after dead end and am desperate to find help for her. Is there anyone out there that can at least point me in the right direction? Any information would be greatly appreciated! Thank you in advance. -elaine

2Joy2love
Hope

Your daughter is blessed to have you. It is so devastating to have a child who is struggling. The many doctor's appointments, the concern, the cost(which puts extra stress on the family), feeling overwhelmed, frustrated and not sure what to do next. I know that my daughter's struggle with her eating disorder seemed to take over my life. I hope you can take care of yourself. It will make it easier for you to take care of your daughter. I finally saw a therapist for myself and it helped me a lot, I wish I had done it sooner.
I do not have any information for you about ARFID. I hope that you can find the answers that will help your child. I am praying for both of you. Please do not give up hope.

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