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Home > Programs & Events > Parent, Family & Friend Network

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Connect with the Parent, Family & Friends Network (PFN)
If you'd like to connect with a PFN member or need to find resources that fit your needs, email us at pffnetwork@myneda.org and we will help direct you to the many programs and resources designed just for you, like the quarterly PFN Newsletter!
Join the PFN to receive our quarterly newlsetter, registration announcements for the new PFN Webinar Series and notifications of upcoming events.
Programs and Resources
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NEDA Navigators are volunteers-- "trained friends" who are non-professionals offering informal support and guidance. To find a NEDA Navigator in your state or learn more about NEDA Navigators, click here. |
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The NEDA Parent Toolkit is a comprehensive guide full of important information, including how to advocate for your loved one. Click here to access to all NEDA Toolkits.
Note: NEDA will send a free Toolkits CD-ROM to schools in your area on your behalf. Getting critical information to those in a position to recognize signs of an eating and intervene is as easy as filling out this request form! |
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The Loss Support Network is a new program connecting those who have lost a loved one to an eating disorder for support. You can get involved by volunteering to support others who are dealing with a loss, requesting support from a current volunteer, or by connecting with other volunteers. |
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TheSTAR Program fights for awareness, education, early intervention and prevention programs, funding for research, and improved access to treatment of eating disorders. For more information or to get involved in advocacy efforts, click here. |
Battling with your insurance company? You are not alone. Help us raise awareness about this common and unconsionable practice. Let others gain from your experience and help us improve access to treatment. Share your stories for the NEDA Bank of Insurance Stories. Complete the fillable form, save it, and then email it to star@myneda.org.
The Quarterly PFN Newsletter, Making Connections, brings you coverage on eating disorders from a wide array of perspectives, including parents, clinicians, and people in recovery. The most current version of Making Connections is listed below. For a complete archive of past issues, click here.
Webinars
Upcoming:
Eating Disorders Affect Siblings Too
Wednesday, May 30th, 6:00-7:30pm Easter Time (5:00-6:30 Central, 4:00-5:30 Mountain, 3:00-4:30 Pacific)
Eating disorder specialist Libby Neal, MA, LPC and Anna Thurmaier, RN, sister to someone in recovery, will lead this presentation on how to support a sibling who's struggling, while also practicing self-care and setting boundaries. For more information and to sign up click here.
Free and open to all, pre-registration required.
Archived:
Working To Obtain Insurance Coverage for Care: Guidelines for Providers and Families
People seeking treatment for eating disorders seldom have the resources to pay for intense residential therapy necessary to recover, and few insurers or health plans understand the disease and are reluctant to pay for treatment. In this presentation, Lisa Kantor, JD, Stacey Brown, RN, and David Christian, PhD, LP, present critical information for families and loved ones, treatment providers, and facility staff. Click here to listen to the archived webinar, recorded on 3/30/2012. To contact Stacey at Avalon Hills call (435) 753-3686, to contact the law firm of Lisa Kantor, call (800) 446-7529. The PowerPoint for this presentation can be found here.
For Dads by Dads: Tips for supporting a child with an eating disorder and practicing self-care
Archived, recorded webinar from 3/1/2012
If you are the father of a child with an eating disorder, we invite you to join NEDA Navigators Mike Pollan and Paul Cordero, with moderator Joe Kelly, for this recorded webinar for fathers by fathers. They will share what they have learned from their own experience of caring for a child with an eating disorder about the role fathers can play in the recovery process. *Please note, there was a technical issue with the recording and there is 1 minute of silence toward the beginning of the recording.
Volunteer Speaker Training: Key messages and sharing stories responsibly
Recorded Webinar
Thinking about becoming a volunteer speaker at a NEDAwareness Week event? Already signed-up to be a speaker but want some tips on how to do it? Listen to this free webinar with NEDA Ambassador, author and singer/songwriter Jenni Schaefer and NEDA Navigators and Loss Support Network Clinical Advisor Ilene Fishman, LCSW to learn about key messaging, sharing your story responsibly, how to handle difficult questions and tips for preparation and delivery. Click here to listen to the webinar archive.
Recovery from an Eating Disorder: What Does Real Recovery Look Like?
This animated webinar, presented by PBS's This Emotional Life, is an insightful discussion on the topic of recovery from an eating disorder. Hear from three panelists who are in recovery. Listen as Ovidio Bermudez, MD discusses what the road to recovery looks like from an expert's point of view. Moderated by NEDA President/CEO Lynn Grefe.
Do you have an idea for a webinar? Are you interested in contributing?
Email pffnetwork@nationaleatingdisorders.org to share your ideas and thoughts.
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